Patient Stories
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Have you or a loved one been told a Hemispherectomy is needed to control seizures or to stop the progression of a diagnosed brain disorder? Learn what others have experienced having undergone this surgery and increase your understanding of the issues facing your loved ones.

Many people have been touched by hemispherectomy surgery. For most, being able to share their experience is often therapeutic and helpful to others. We hope that you find inspiration through these personal experiences.
Aaron's Story

AT 17, Aaron Purnell had to choose between death and an operation that would leave him disabled. Read More...
Aiden's Story

Aiden Waters is fortunate to be living in the 21st century when a surgical option exists for treating Sturge-Weber Syndrome. Read More...
Avery's Story

I have undergone 3 brain surgeries in my short life. Read More...
Cameron's Story

Cameron’s best hope was a hemispherectomy, a surgery to remove half her brain.
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Cole's Story

Before surgery Cole tested at the level of a three-month-old. But in the three months since, Cole has gained one and a half years in development. Read More...
Jessie's Story

Months of uncontrollable seizures and a diagnosis of Rasmussen’s Encephalitis brought Jessie Hall to Hopkins Children’s in June for the most radical procedure in neurosurgery, hemispherectomy – the removal of half of her brain. Read More...
Josie's Story

March 2005, toddler Josie Wathan had her first seizure. The Iowa 2-year-old was put on medication, but by her fourth birthday, hundreds of seizures gripped her body each day. Read More...
Keeley's Story

Just like lots of children her age, little Keeley Green is a bright and mischievous, loves music and playing tricks but she is not like other kids. She has only half a brain. 
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Sarah's Story

At age 6, Sarah Alward experienced her first seizure. Once the seizures started, they wouldn’t stop. She was diagnosed at Cincinnati Children’s with a rare disease called Rasmussen’s encephalitis. Read More...
If you would like to share your story on our website, send an email detailing your experience, photos and/or videos to our Webmaster.
Brian's Story

One of the rare cases of Sturge-Weber Syndrome that required a hemispherectomy. Read More...

Anes' Story

In March 2008, Adis and Aldina welcomed a son, Anes, into their world.  They took him home and marveled at him.  It was only a couple of days before their happiness turned to worry when Anes began to have what they would quickly find out were seizures. Read More...
Alaina's Story

I had the right half of my brain removed when I was seven, and now, at twenty-one, I am seven months away from graduating from Johnson State College with a B.F.A in Creative Writing. Read More...
Lily's Story

Suffering over 350 seizures per day due to a stroke, 10 month old Lily underwent 2 hemispherectomies on one month. Now she is seizure free.
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Nathan's Story
Nathan was born in August of 1997. It was a normal pregnancy and delivery and he went home at the normal time. Within three days of being home, Nathan's mother noticed something. Read More...
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PO Box 1239  | Aledo, Texas 76008                                                                                             All Accounting Services Provided by Shelton, Mead, and Shelton, CPAs
Rory's Story
Rory was a fantastically bright toddler with a keen interest in books, stories, imaginative play, craft, even reading, when at age 4 he had a massive seizure. We were told to go home and forget it had happened. Then it happened again and again, huge status epilepticus seizures that seemed unending.  Read More...