Lynn Miller

Specialty Director, Rasmussen's Encephalitis
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Contact Information

Specialty Office
8235 Lethbridge Rd.
Millersville, MD 21108

Phone
(410) 987-5221

Email
lynn@hemifoundation.org

Specialty Disease Page
Rasmussen's Encephalitis
  In 1993, soon after her 3rd birthday, Lynn’s daughter, Jody, suffered her first seizure.  During the course of that year, Lynn and her husband, Al, tried one drug after another in the search to stop the seizures that occurred at first once a day, then started increasing in frequency after several months.  Once they transferred her care to nearby Johns Hopkins Children’s Center, they finally got a diagnosis – Rasmussen’s Encephalitis, or Rasmussen’s Syndrome, as it is sometimes known.  Several months later, Jody underwent a right hemispherectomy at Hopkins.  Soon afterward, the Millers started meeting with other families coming into Hopkins for hemispherectomies; this blossomed into a loose support network and led to the beginning of the Reunions held every 3 years in Baltimore. 

  Al and Lynn have been married since 1984 and have 2 older sons in addition to daughter Jody. Lynn, a dedicated mother, was very involved in all her children’s activities – soccer, dance, youth group, etc.  Now that all 3 are out of the house for the majority of the year (Jody just started college), Lynn continues to be involved in her church’s youth group, as well as other church activities such as evening studies and choir.  Al and Lynn recently enjoyed an “empty nest” vacation and continue as well to be very involved in hemispherectomy support.

Jody Graves
Assistant Specialty Director, Rasmussen's Encephalitis
Contact Information

Email
jody@hemifoundation.org
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